Page 3 - Talk of Tequesta - December '23

The Talk Of Tequesta, Page 3

ChariTy evenT from page 1 no more than two years. Now 19, Ava continues to defy the
odds. She attends The Learning Academy on the campus of
a Saturday Night Live the Els Center of Excellence and although she is nonverbal,
(SNL) theme. With four- severely delayed and has multiple daily seizures, she is a
plus decades of iconic happy, joyful girl.
characters to choose Adam and Lissa have become more and more involved
from, 2023’s attendees with the foundation each year. What started as a small party
had no shortage of wild with friends and family hosted at the Gumsons’ home in the
and crazy inspiration for early years has blossomed into a major annual event now
the evening. With the held at the Tequesta Country Club. The monies raised since
support of hundreds of the 2006 help the foundation to fund research grants at both
firm’s friends and family Baylor University and the University of California at San
over the years, Adam Francisco, underwrite the cost of wheelchairs and equipment
and Lissa Gumson of that otherwise may not be obtainable and subsidize the cost
Jupiter Law Center have for Aicardi families to attend the every-other-year Family
raised almost $600,000 in Flint Technologies donated a laptop computer as it has for Conference where people from all over the world gather to
donations to the Aicardi many years, It’s Sugar contributed boxes of Schweddy Balls, exchange information. This, in turn, enhances each family’s
Syndrome Foundation, a 100 percent volunteer run nonprofit and golf-related raffle items provided by Tequesta Country ability to care for its own Aicardi child. Since only 4,000
organization. Club to ensure that spirits were high and contributions kept girls worldwide are afflicted with Aicardi Syndrome, there
The signature event is an Annual Halloween Aicardi coming as everyone tried their luck in the evening’s games of is very little money for research and the foundation is made
Costume Party. This year’s October extravaganza saw chance. And of course, Jupiter Law Center’s staff once again up entirely of volunteers (mostly the affected families and
attendees dressing like their favorite SNL character. From put in countless hours of coordination and were there for the their extended family and friends).
the “nice” of Roseanna Roseannadanna to the “naughty” evening, insuring guests were welcomed and coordinating To learn more about Aicardi Syndrome, the Aicardi
that can’t be printed in a polite paper (let’s just say there donations and raffle efforts. Syndrome Foundation or Ava Shaye Gumson and/or the other
were strategically placed holiday wrapped boxes involved), Nearly $40,000 was raised for the Aicardi Syndrome Aicardi girls, log on to www.aicardisyndromefoundation.
partygoers reached into the archives for inspiration. The Foundation and more donations will continue to arrive org and/or www.ouraicardilife.org or contact Jupiter Law
muse for this annual affair – Lissa and Adam’s daughter through the balance of the year. The event is a passion project Center at (561) 744-4600 if you have any other questions
Ava – came as a Spartan cheerleader (as did many others in for Adam and Lissa Gumson, whose oldest daughter, Ava, was about Aicardi Syndrome or about how you can help support
attendance), ready to cheer on guests who donned costumes diagnosed as a baby with Aicardi Syndrome, a rare congenital the foundation.
spanning the decades, from the early years of Killer Bees, neurological seizure disorder which inhibits the normal
Blues Brothers, Land Sharks, Wild and Crazy Guys and development of motor skills, sight and speech, causing mild
Father Guido Sarducci to Da Bears fans, Hans and Franz, to profound developmental delays. When she was diagnosed,
Wayne and Garth, Mary Katherine Gallagher, Opera Man, the Gumsons were informed that Ava’s life expectancy was
and Sally O’Malley.
Classic SNL skits
pulsed from big screen
TVs, fun music kept the
energy high and people
on their feet, there were
photo ops in front of
iconic SNL backdrops
and the food and drinks
from Tequesta Country
Club staff dressed
as Coneheads kept
everyone fueled in style.

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